Voices of Alzheimer’s
In 2005, cancer survivor Debra LaChance founded the Healing Project to create a community of support for those living with chronic and life-threatening illness. ... more than 40 people whose lives have been profoundly touched and irrevocably changed by Alzheimer’s disease ... including actress Kate Mulgrew... share their stories, providing readers with insights into living with the disease from its early, often unnoticed beginnings to its final, devastating stages and beyond. Contributors include victims, spouses, family members, friends, and caregivers who write with dignity, candor, and humor about their journeys and the sometimes positive and unexpected effects the experience can have. ... . This poignant, insightful, distinctive, and informative book is highly recommended for all public and academic libraries. – Library Journal starred review on Voices of Alzheimer’s
As with all books in the Healing Place series, Voices of Alzheimer's gift is its ability to distill the many facets of a disease into poignant and memorable short essays Readers hear from families who, while changed forever by Alzheimer’s, still felt that they did the best they could under the circumstances. Many writers describe the peace that they were able to achieve about their own family member's condition, even in the midst of heartbreak.
It is particularly relevant that we hear repeatedly who each writer's special person IS: a beloved wife, a father who loved to garden, an immigrant from Yugoslavia, a grandpa who loved to give out dollar bills. Every individual with AD lived a life experience before it which is worth the time to know. With AD in particular it can be reassuring to family members that their loved one's life has significance, and what has made that person so special to them can never disappear.
The books that I have seen in this series do include brief discussions about medications and research, but the wide range of incredibly personal family stories take center stage. In the case of AD this means it may be appropriate for different caregivers at different times, depending on their loved one's AD stage and their own grief process. This book is highly recommended for anyone working in AD areas, including assisted living, residential care, clinical, and community day care settings. – amazon.com 5 – star customer review of Voices of Alzheimer’s.
I purchased this book for the three pages by Kate Mulgrew (a.k.a. Captain Janeway), but after I read her provocative pages I started the book from the beginning and just couldn't put it down. This book is packed with honest, jarring anecdotes that literally take your breath away.
This is a beautiful book, but it is absolutely heartbreaking. I'm not sure that it is the kind of book you would give to someone who has just been diagnosed with Alzheimer's, although, on the other hand, perhaps it could spur that person to take care of living wills and other business while they are still able to make rational decisions.
Reading this book could have immeasurable value to caregivers, as they may feel less isolated and more connected, empowered. And I think it would be an excellent book for anyone who is trying to understand the impact of Alzheimer's on caregivers and families.
The book also works as an advocacy piece -- I can't imagine anyone reading this book without feeling motivated to DO something -- donate money, volunteer, sponsor a friend going on an Alzheimer's walk, work for a cure, etcetera.
I know it says something important and perhaps hopeful about the human spirit that ordinary people watch those they love be destroyed by this disease, that they care for them, suffer with them, perform profound acts of love and compassion, and eventually come out on the other side. But for now, Alzheimer's disease doesn't have happy endings. – amazon.com 5-star customer review of Voices of Alzheimer’s.
This is an EXCELLENT publication and I am so very happy for the publishers that they decided to go for such a worthwhile effort. Wonderful stories, etc - great source of information from the mouths of those most closely informed by this disease. I highly recommend this book, and the coming series, to anyone having a family member with one of these diseases, or caring in general about others and wanting to understand as much as possible. – amazon.com 5-star customer review of Voices of Alzheimer's.